Big Data and Ethics (The Medical Datasphere) – Jeröme Béranger – 1st Edition

Description

Faced with the exponential development of Big Data and both its legal and economic repercussions, we are still slightly in the dark concerning the use of digital information. In the perpetual balance between confidentiality and transparency, this data will lead us to call into question how we understand certain paradigms, such as the Hippocratic Oath in medicine. As a consequence, a reflection on the study of the risks associated with the ethical issues surrounding the design and manipulation of this “massive data” seems to be essential.

This book provides a direction and ethical value to these significant volumes of data. It proposes an ethical analysis model and recommendations to better keep this data in check. This empirical and ethico-technical approach brings together the first aspects of a moral framework directed toward thought, conscience and the responsibility of citizens concerned by the use of data of a personal nature.

Table of Contents

Front Cover.
Half Title Page.
Title Page.
Copyright Page.
Contents.
Acknowledgements.
Foreword.
Introduction.
1: The Shift towards a Connected, Assessed and Personalized Medicine Centered Upon Medical Datasphere Processing.
2: Ethical Development of the Medical Datasphere.
3: Management and Governance of Personal Health Data.
Conclusion.
Appendix 1: Advantages of Big Data Technologies According to Data Sources and Stakeholders.
Appendix 2: Issues Involving a Data Management Platform (DMP).
Appendix 3: Evaluation Criteria on the Ethical Evaluation of Personal Health Data.
Appendix 4: OECD Guideline Principles Governing the Security of the Systems and Information Networks.
Glossary.
Bibliography.
Index.

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